While walking home yesterday, the idea crossed my mind again. Since I am running, why not raise fund for RP medical research? Although I stated here RP because is part of me, in reality, all rare diseases need your support especially in medical research. Is so rare, hardly is money going in and no money means that the diseases will “claim more lives”. I know is not easy in medical research, any research to be exact. My hope is a way for early detection, which gives a way of preparing patients how to handle the disease at a later stage and the detection method is “cheap” to reach to 3rd world countries. Most cases of RP with no family history, only get detected when they are almost blind. Even if they have the money, sample in medical research can be “rare”. My previous post where I donated my tissue sample and blood to Centre of Eye Research Australia and Australia Inherited Retinal Disease Register and DNA Bank.
To support my initiative: https://give.everydayhero.com/au/retinitis-pigmentosa-medical-research
I would be delighted if you donate for RP medical research but if you don’t, consider donating to any medical research for other rare diseases, something you can place in your heart and be happy about. Most importantly, no matter how small your contribution, there are things that purely depends on you, it always begins with you.