Updated, thanks my dearest RP friends! This is for us by us ๐Ÿ˜

RP patients are mostly not blind yet. We look “normal”, no white cane, although some of us do have our faithful white cane especially at night. Our vision is just less.

  • When we tell you we have RP, we don’t want your sympathy, just your understanding.
  • We have dark blindness. When we said we can’t go if it is at night, no, is not because we don’t like you. We like you so much that we know your house and my house are really far, so I don’t want you to go through the hassle to bring me home late at night.
  • Please, do not leave the cabinet door open or anything on the floor. Our vision is tunnel vision. We are really sorry to the doggies or cats we accidentally step on. We love animals! I knocked on this sign in public lots of time. Yes, we developed ability to laugh at ourselves, but please don’t judge us as clumsy.
  • When we said we will not see screens, we are not being lazy to check email or work. Our eyes just can’t take it.
  • Yes, we run, we cook and do everything like normal people do but we might not realised we dropped something and mess the place. When we dropped something, very likely we can’t see it. We will be super grateful if you can help us find although is just “right” in front of us.
  • If possible, can the steps have different contrast? Dark grey steps makes it super hard for us because we lose our colours slowly. Black, dark blue, dark red, anything dark, the dark side is a black hole! We can never find anything! But sometimes even if the thing is same colour as the background, we too can’t distinguish.
  • When we say we can’t see, we really can’t see although sometimes we can. ย If you see me in public and wave but I donโ€™t wave back, itโ€™s not because I donโ€™t like you; itโ€™s because I probably canโ€™t see you. We too are not being rude when we accidentally bump into stranger, we bump into pillars too.

Thank you very much for your understanding! Dearest RP friends, anymore to add? With this, I launch my #RPAwareness. RP friends, family and friends, feel free to share this.