Recently, someone close opened up that she has multiple sclerosis (MS). Over the years, I knew she has problem but she never open up. Is not because she didn’t know her condition but she fears people will think she has some sort of infectious disease and she didn’t want to burden anyone. The part of burdening someone, I can relate. Last year, I was told that another friend from primary school has ALS. Although both MS and ALS have its differences, but the similarity here is your body lose control because is a nerve problem. The story I was told, that friend went to hide because she didn’t want to burden her family. This type of disorder, at some point you need help. This too is a reminder to myself. This really melts down to education. Clearly, is not an infection disease. Yes, is genetics but you don’t choose your genes. I will put a scenario. Imagine if you fainted, no around you know what is wrong with you, lots of tests are performed but this could have been saved for other patients. And your family is worry sick! Now, let us turn the situation around, you fainted and the people around you knows what is wrong and have the correct procedure to help you. It really begins with you. If no one knows your condition, then educate them. Come out from that shell not only for yourself but others. I am very sure, everyone is more than willing to help 😍
After hearing stories of MS, actually someone commented this too in RP Awareness FB page, RP is not so bad. I am going to frame this as a maths problem because I am a nerd. What is the probability a person gets a rare genetics disease with no family history? Hell, I am one darn lucky girl! 👻 Don’t run away, face your fear! Live life to the fullest surrounded by the people you love!