Ping2 on the RUN =D

I set my goals high! Yes, I fell hard all the time but time and again have shown me that I landed stronger, to climb again! When you know you are going blind, you wake up everyday not to meet others' expectation, but to work hard for what you truly enjoy and believe in. This is my journey



Grounding on Gratitude

I would never ever to think I will ever be grateful to “have” RP before this, but now, whenever I see someone “giving up” their lives, it makes me think, I should be grateful of RP.

RP makes me a stronger person.

RP makes me cherish everything I can see.

RP makes me search for what I really want to do in life, places I want to explore, what I want to achieve.

RP makes me appreciate the people that truly cares.

RP makes me to take my health seriously.

RP shows me that I can do a lot of things even with limited vision.

I choose to live my life to the fullest, so can you!


RP-ers, do you guys have low hemoglobin?

Purely out of curiosity, do RP patients have lower hemoglobin count?

I will regret not because I didn’t meet your standard but because I didn’t give my best

I got the revised sentences working but the T and H, not so easily solved.  Mood: happy

Next goal: try with semantic similarity?

System: how to capture text that is useful to compare the meaning?

My reward for getting 1 small part done, longer run!!! 🤓

is not all sunshine!

Stop being Lucy!

I need to start blogging when I do get sad and down like a normal human being, later…

As unique human being, all of us have special needs!

Something I extracted from Facebook status:

Many people think that a suicide attempt is a selfish move because the person just does not care about the people left behind. I can tell you that when a person gets to that point, they truly believe that their loved ones will be much better off with them gone.This is mental illness not selfishness.

TRUTH: Depression is a terrible disease and seems relentless. A lot of us have been close to that edge, or dealt with family members in a crisis, and some have lost friends and loved ones. Let’s look out for each other and stop sweeping mental illness under the rug.
If I don’t see your name, I’ll understand.

May I ask my family and friends wherever you might be, to kindly copy and paste this status for one hour to give a moment of support to all those who have family problems, health struggles, job issues, worries of any kind and just need to know that someone cares. Do it for all of us, for nobody is immune. Hope to see this on the walls of all my family and friends just for moral support. I know some will!!! I did it for a friend and you can too.

You have to copy and paste this one, no sharing. thank you.


As unique human being, all of us have special needs!

Human is so unique that we tend to take thing for granted but how if you never take that thing for-granted and it was taken away from you?  I will definitely support as much as I can those that in need of support but I will work closer with those that require special needs at older age because I personally feel that I am going to be “troublesome” and this is the type of thinking that will lead a lot of people that requires special needs to develop depression.  Is not easy to overcome this type of thought but only with support and awareness is important!  They are not selfish, they just need a little love 😀

What do you want to be? What do you want to achieve?

What I want to be?

I want to be a person that inspire others to be healthy and happy especially those that requires special needs at older age.  I want to be a person that can “see” with my heart! 🙂

I want to be like this man 😀

What I want to achieve?

I want to complete my PhD and work with deaf children.  A lot of people are inspired by people they don’t know but I want them to know that I am a real person!  I cry and I laugh and I have to work hard even if I am different bur once I set my goal, no matter how different we are, we can achieve it!

I want to set up a centre to give moral support especially to people become disabled at older age.

I want to complete a full marathon!

There is a lot of things we don’t know but always look ahead:

Science our way to see again!

This type of research is important because if new brain cells can grow, so do eye cells!

Is a genetic disorder, is it possible for us to alter our DNA?


what’s your excuse? 😉

In search of that balance

I have my own idea of eating healthily, I believe balance is the key but I am still quite far from being ideal “eater”.  I can still retained an amount of vision is partially due to my diet.

My weaknesses:

  • the way I snack, I brought my mandarin oranges and avocados but instead I snack on dark chocolate, which is actually not so bad but the sugar is and the worse one so far today is rice crackers with tonnes of salt.
  • My caffeine intake is 2 high!  I am trying to have just a cup of coffee a day follow by the day with tea, in hand I have ginger, white and green tea and of course black tea.
  • I have this habit of reading in the dark, which I am working to stop it

The past 2 years, what I usually have for:

  • Breakfast (Mixed and match two of those)

bread, peanut butter and jam, half-boiled eggs, garlic bread, orange, banana, avocado, oat with milk, nuts and cereals, with chia seed, a glass of warm lemon water, recently I discovered hummus and fresh salad vege on bread

  • Lunch

Sushi, rice, fried tomyum vermicelli, chicken, wraps, beef, pasta, I always try to add fresh veges to my meal

  • Dinner

Noodles, seafood, soup, similar to Lunch, as I will cook for dinner then packed for lunch

  • Snack

Greek yogurt, rice crackers, chocolates, wafer

My ultimate goal, easy to prepare, delicious and healthy balanced diet.  I will try find time, upload a few photos of the food I prepared to give motivation to ppl to prepare easy delicious meal!  Do I eat out?  Of course, my choices are normally those food I can’t prepare or too complicated like pie, nasi lemak, etc.

Never ever stop yourself from eating anything!  The key is moderation!  Want that ice-cream, go for it but just a scoop will do!  😀

Currently I do 50 mins yoga once a week which include 5 mins meditation, run 2-3 times a week about 6 kms per run.  I try to sleep at 9.30 pm and wake up at 6 am.  In the morning, 4 times a week a 5 mins glut and tummy workout.  I read constantly, so what is lacking may be I need more entertainment, kakakaka

Remember, RP is a disease which instruct your eye cells to “die”, living healthily do not change that but I believe it slows down the process, hey!  practicing balance do make you look “younger” 😛  Is not easy to find that balance, you have to be strong to make that choice!

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